Hemophilia Well-being Index (HWBI) Questionnaire
8-item version / One composite global score (Well-being Index)
Psychometric study (development and validation) available here
HWBI is indexed by PROQOLID/ePROVIDE (Mapi Research Trust, France)
COPYRIGHT NOTICE AND USER AGREEMENT
The HWBI questionnaire is currently available in five languages (English, Spanish, Portuguese, Russian, German, Italian), all versions are property of the author Prof. Dr. Eduardo Remor.
To use the questionnaire, the potential user has to contact with the author. The questionnaire copyright is to be acknowledged in the use and the publication of any results.
Although available at no charge, the use of the HWBI is subject to the standard copyright protection, i.e.
– the original source and authorship shall be quoted and acknowledged,
– the instrument shall not be modified to maintain its scientific integrity.
Development of new translations, modified versions or any other derivatives – such as electronic versions – are not permitted without permission and involvement of the author. Please contact Prof. Dr. Eduardo Remor.
HWBI Scoring Procedure | Corrección On-line | Correção Web
To facilitate the job of scoring the HWBI questionnaire and to garantee that the scores are correct. We’ve created a simple web page (through SurveyMonkey) that will do it for you. You fill the form with the responses of the patients you evaluated, we correct the scores and we send back to you the scores and details (i.e., basic statistics). The process is free of charge. This score system will help to continue assessing psychometric properties of the HWBI and achieve sample to normalize the scores of the instrument and cutoff scores for different degress of well-being related to hemophilia.