Publications

Remor, E. Psychometric field testing of the Hemolatin-QoL questionnaire. Heamophilia 2016; 1-11. DOI: 10.1111/hae.13055 [LINK]

Remor, E. Development and Psychometric Testing of the Hemophilia Well-being Index. International Journal of Behavioral Medicine 2013; 20, 609-617. [LINK]

Remor E. Quality of life and symptom assessment in hematological patients. Bleeding disorders. Hemophilia.. In: A. Novik; S. Salek; T. Ionova. (Org.). Patient-Reported Outcomes in Hematology (pp. 90-98). 1st ed. Genoa: Forum Service Editore, 2012.

Remor, E. Quality of life in hemophilia. In: E.C. Rodríguez-Merchán & L. Valentino. (Eds.) Current and future issues in hemophilia care. Oxford, UK: Wiley-Blackwell, 2011. doi: 10.1002/9781119979401.ch11

Remor E. An overview of HemoLatin-QoL project. Quality of Life Research 2009; (Suppl.), A54-A55.

Remor E. Psychometric field study of the HemoLatin-QoL, evidence for 297 adult patients living with hemophilia in Latin American countries. Haemophilia 2008; 14 (Suppl. 2), 152.

Remor E, Marques de Aquino BYS, Garrido Luque A, Graña S, Rodriguez-Otero M, Rizzo Battistella L. (2006) “HemoLatin-QoL”: Psychometric study of the Latin-American disease-specific quality of life questionnaire for adult patients living with hemophilia. XXVIIth International Congress of the World Federation of Hemophilia. 21-25 May. Vancouver, Canada. [Poster]. Publicado en Haemophilia, 12 (Suppl. 2), 124.

Remor E. (2005). Desarrollo de una Medida Específica para la Evaluación de la Calidad de Vida en Pacientes Adultos Viviendo con Hemofilia en América-Latina: el Hemolatin-QoL. Revista Interamericana de Psicología/Interamerican Journal of Psychology, 39 (2), 211-220.

Arranz P, Remor E, et al. & The Hemofilia-QoL Group. (2004). Development of a new disease-specific quality of life questionnaire to adults living with hemophilia. Haemophilia, 10 , 1-7.

Remor E, Young NI, von Mackensen, & Lopatina EG. (2004). Disease-specific quality of life measurement tools for haemophilia patients. Haemophilia, 10 (Suppl. 4), 30-34.

Remor et al. La sobreprotección como un factor de riesgo en la reducción de la autoestima en niños con hemofilia. Psiquis 2003; 24, 191-196.

Remor E, Arranz P. & Miller R. Psychosocial impact of inhibitors on haemophilia patients’ quality of life. In: E.C. Rodrigues-Merchan & C. Lee (Eds.). Inhibitors in patients with haemophilia. (pp. 187-192). Blackwell Science: Oxford, UK. 2002.