The beginning (2000, Canadá)
At the XXIV International Congress of WFH from 16 to 21 July 2000 (Montréal, Canada), Dr. Pilar Arranz (Psychologist of the Hematology and Hemotherapy Service – La Paz University Hospital, Madrid) and Dr. Eduardo Remor (Researcher at Universidad Autónoma de Madrid) coordinated a meeting with a group of Health professionals and volunteers from NGOs from different Iberoamerican countries interested in exchanging experiences on psychosocial intervention in the area of hemophilia.
The following countries were represented: Argentina, Brazil, Chile, Cuba, El Salvador, Guatemala, Honduras, Mexico, Nicaragua, Panama, Peru, the Dominican Republic, Uruguay, and Venezuela. The participants of each country shared the difficulties and experiences, as well as the resources available to assist the collective of people affected by hemophilia. The need to exchange information and resources among psychosocial professionals in the field of hemophilia was discussed. To this end, the possibility of establishing effective and frequent channels of communication between different countries and organizations was considered as a possible strategy to address the above mentioned difficulties and barriers. In order to respond to this need for international collaboration, the communication network (mailing list) was created, under the coordination of Dr. Eduardo Remor. Iberohemofilia.net (formerly Infonetwork_hemofilia) was created on July 26, 2000, using the new communication technologies. The objectives are to enable quick and easy communication, to promote the development of multidisciplinary interdisciplinary research among the Iberoamerican countries members of the Iberohemofilia.net network, to develop research, publications with international participation, and to disseminate the work developed by the different professionals, facilitating the exchange and update regarding knowledge about care of hemophilia and other congenital coagulopathies.
Second meeting (2002, Spain)
At the XXV International Congress of WFH from 19 to 24 May 2002 (Seville, Spain), the interdisciplinary group of Ibero-American professionals and NGOs members of Infonetwork_Hemofilia met for the second time. The meeting was coordinated by Dr. Pilar Arranz and Dr. Eduardo Remor. With an attendance of 33 professionals and discussed different topics of interest related to the psychosocial field and quality of life of people living with hemophilia. The countries represented at the second meeting were: Argentina, Bolivia, Brazil, Colombia, Costa Rica, Ecuador, Spain, Mexico, Nicaragua, Panama, Peru, Uruguay and Venezuela.
Third meeting (2004, Thailand)
At the XXVI International Congress of WFH, October 17-21, 2004 (Bangkok, Thailand), the interdisciplinary group of Ibero-American professionals and NGOs members of the Iberohemofilia.net network met for the third time. The meeting was coordinated by Dr. Eduardo Remor. The new web of the network (iberohemofilia.net) and future developments. We also briefly discussed the status of research in the field of quality of life in hemophilia, specifically the Hemolatin-QoL Study. Information on the creation of an international psychosocial committee in the WFH was provided, which has the representation of Latin America through the Argentine Psychologist Silvina Graña. The countries represented at the third meeting were: Argentina, Brazil, Colombia, Costa Rica, Ecuador, Portugal, Spain, Mexico, Panama, Peru, Uruguay and Venezuela.
Fourth meeting (2006, Canada)
The XXVII International Congress of WFH, May 21-25, 2006 (Vancouver, Canada), hosted for the fourth time the interdisciplinary group of professionals and Ibero-American NGOs members of iberohemofilia.net, taking advantage of the pre-congress activity organized by the WFH .